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The size and spread of government payments in past 12 months has held steady, and to some extent, improved the circumstances of many on low incomes or government support. The withdrawal of that support risks returning many to payments that do not provide for basic human needs.
3 December has a couple of interesting resonances for this blind Jesuit. It is the feast day of St Francis Xavier — Jesuit missionary extraordinaire. It is also the International Day of Persons with a Disability. It seems to me that the two anniversaries have more than a little in common — both in what they tell us about the limits and the promise of human life in the image of God.
For many people, illness has a narrative: a clear beginning, middle and end. If we’re lucky, the ending is actually a fresh start where the illness is gone and our hero is returned to normal life, changed but stronger because of their ordeals. In the lives of those with chronic illness, however, those lines are blurred; our descent into illness may have been gradual and there might be no end in sight.
While the legislation was proposed as something of a measure of last resort, the numbers already tell a different story. Unfortunately, many of us with a disability look at these figures (and at the proposed legalisation of euthanasia in New Zealand, which will be voted on later this year) with a weary mix of familiarity and horror.
With all its good intentions and charming participants, Love on the Spectrum is for the neurotypical eye. Just like The Undateables, a similar show from the UK, it takes the inner machinations of disabled lives and creates entertainment for non-disabled viewers. Autistic representation on television is rare, which makes it all the more alienating when these few depictions exist purely for everyone else’s warm-n-fuzzies.
Disabled people, and those that love them, have told the latest hearing of the Disability Royal Commission about their experiences in the health system. Neglect, abuse, violence all featured, with medical people and systems often talked about, not as caring health professionals, but as callous and cruel.
My personal experience during the first 18 months of involvement with the NDIS, was frustrating and particularly deflating for someone who had written submissions and emailed politicians and understood the potential of the scheme. My only contact seemed to be with an immovable, impossible-to-navigate bureaucracy determined to stand in the way of me receiving any support I was promised.
From the minute we enter the education system, we experience barriers. We are segregated when we arrive at primary school, placed in 'special' units or classes. Here our needs are subsumed into the collective needs of the group. From the outset our educational outcomes are at the whim of the people who are in the position of power.
This bias continues to be so prevalent not only because medicine is a reflection of society, but because medicine was created with cisgender white neurotypical able-bodied men as the baseline. Those underlying assumptions are still baked into medical systems and filter down to all aspects of medicine.
The media played an important role in getting us to a royal commission. Now, it will play a role in how the RC paves the way for reducing rates of violence, abuse, neglect and exploitation experienced by people with disability. It will also play a role in enabling survivors of trauma to share and start healing from their experiences.
'Refugees/not refugees — here it is all the same,' a man tells me with a shrug. There seems to be both recognition of the impossibility of the situation for all who have been left here — but also an attitude that no one should be left behind.
Rather than credit their physiques to intense exercise and diet regimens, celebrities now owe it all to 'wellness'. And you owe it to your health to get on board the wellness express. When it comes to conversations regarding women's health and noncommunicable diseases however, this talk of wellness becomes problematic.
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